Well that wasn't expected news

[Highlander]

Just to make a long story short, sometime in the near future I'm looking at blood transfusions, chemo and a bone marrow transplant.

But "It's not cancer" according to the doctor.

It's going to be a fun year!!

 

[Boudie]

Stay strong and try to keep a good attitude, sorry for the news but it's just another challenge and you'll handle it well.

 

[ChuckMejia]

Hope it all goes well, keep your head up.

 

[havana1]

Good luck, brother!

 

[SurfnSafari]

Just to make a long story short, sometime in the near future I'm looking at blood transfusions, chemo and a bone marrow transplant.

But "It's not cancer" according to the doctor.

It's going to be a fun year!!

First good luck with your medical treatment, but this treatment plan sounds like a Cancer treatment plan?

 

[Patrickh44231]

Well wishes your way brother! Stay strong!

Sent from my SM-G935V using Tapatalk

 

[Hoshneer]

Sorry to hear, keep your head up and if you ever need to talk or if there is anything we can do just ask.

 

[navyvet]

That transplant is not going to be fun. Wishing you luck

 

[kalrith]

Keep your head up man; you can get through this!

 

[Burnaz16]

Good luck with everything brother, I'll keep you in my prayers. I obviously don't know your diagnosis or where you are located but look into antineoplastin therapy. Its an amazing alternative to chemo that's had extremely promising results without the devastating side-effects. There is actually a documentary on it if you are interested that's named after the doctor (Dr. Stanislaw Burzynski). The doc is called Burzynski. The therapy was originally only available in Texas but there are a few clinics located in other states. Do some research with respect to what you have and see if it's a viable option. And don't just trust your own doctor on it if he shit's on the idea, unless it's for certain not applicable for your case (i.e., get a second opinion or contact Dr. Burzynski's clinic directly and speak with them). Many physicians have disregarded it and its been the first and only treatment to cure many incurable brain cancers in children and adults, as well as many others. If you need any research studies on it or have any questions feel free to contact me.

 

[irratebass]

Here's to a speedy recovery, and keep your head up brother, if you need to talk or anything, just holler.

 

[Highlander]

First good luck with your medical treatment, but this treatment plan sounds like a Cancer treatment plan?

I know, and I asked the doctor point blank and he said no. His quote was "the engine that makes my bone marrow is broken". The kicker is that in everything but this I'm healthy. All the other blood markers that point to it being cancer are normal. I'll find out more this Friday.

I'm in NC.

 

[Bondo 440]

Good Luck, Hi !!

 

[Burnaz16]

I know, and I asked the doctor point blank and he said no. His quote was "the engine that makes my bone marrow is broken". The kicker is that in everything but this I'm healthy. All the other blood markers that point to it being cancer are normal. I'll find out more this Friday.

I'm in NC.

So is this more autoimmune related or they haven't told you? If it's myelodysplasia (myelodysplatic syndrome), aplastic anemia or something along those lines I would definitely get a second opinion prior to proceeding with a chemo regimen only because bone marrow suppression is a common side-effect to the drugs used.

 

[SurfnSafari]

I know, and I asked the doctor point blank and he said no. His quote was "the engine that makes my bone marrow is broken". The kicker is that in everything but this I'm healthy. All the other blood markers that point to it being cancer are normal. I'll find out more this Friday.

I'm in NC.

Well it sound out like some sort of blood disease from your explaination. I know as I worked many moons ago at a place called City of Hope - National Medical Center in Duarte CA. We were pioneers back then in bone marrow transplants. That was the late 1970.

BMT have come a long way, are more successful, and have better outcomes. I only hope you are seeing a hemotoligist at some large medical center in your home state.

As with most serious medical condition you want the best team available as your doctors.

Good luck, and PM me if you have any question, I maybe have some ideas.

 

[Highlander]

So is this more autoimmune related or they haven't told you? If it's myelodysplasia (myelodysplatic syndrome), aplastic anemia or something along those lines I would definitely get a second opinion prior to proceeding with a chemo regimen only because bone marrow suppression is a common side-effect to the drugs used.

myelodysplasia- I think that's what he said but I'm not sure. I wasn't taking notes. He did mention a second opinion and we will discuss that Friday.

 

[SurfnSafari]

Mayo Clinic has wonderful resources.

https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/symptoms-causes/syc-20366977

 

[Highlander]

BMT have come a long way, are more successful, and have better outcomes. I only hope you are seeing a hemotoligist at some large medical center in your home state.

Yes, I'm seeing a Hematologist at one of the largest cancer centers in the area. I know someone that's a researcher at the group who has been studying this type of illness and she said he's one of the best in NC.

 

[SurfnSafari]

Yes, I'm seeing a Hematologist at one of the largest cancer centers in the area. I know someone that's a researcher at the group who has been studying this type of illness and she said he's one of the best in NC.

Believe "Duke University" is in NC, assume it is Duke. Sound like you. Have your bases covered.

Assume you say what in posted from Mayo Clinic, go info laymen can understand.

 

[Highlander]

Mayo Clinic has wonderful resources.

https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/symptoms-causes/syc-20366977

Yep that is it I'm pretty sure. This has been developing since 2010 but in the last year has accelerated, only recently affecting the white blood cells. Interesting they say BMT's aren't recommended. He is kind of staring the slow approack Twice a week blood tests until it reaches a stage when I'll get a transfusion. I don't think he is rushing into the BMT.