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Pray for me Niece who had omphalocele surgery

smelvis

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You got it man I wish I knew someone there I would love to help. Be safe and keep us informed.
 

mthhurley

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Brian,

Thoughts and prayers to you.

If you or the family want to connect with a very close friend of mine who has a boy that has gone through all of this, shoot me a PM and I will get you in contact. They are amazing people and have a blog going on their son and his progress over the years and would happily share their experience with you.
 

Crypto Sailor

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Thanks everyone for the thoughts and prayers, things still seem a little off balance with her, she's having problems with her left lung so she's been placed back into ICU and on oxygen again. I'll keep this tread updated as I get them from my family.

V/r
Brian
 

Crypto Sailor

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UPDATE: Bailey had her bandage on her Omphalacele changed and it looks awesome!!!! Also they un cuffed her Trach and we can hear her beautiful voice once again and they finally started letting her have fluids. And she's off the CPAP but the only time she really wants to smile if when they give her morphine.
 

Crypto Sailor

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I just wanted to tell everyone thanks for the prayers and thoughts. My niece finally got to come home. She's not allowed outside and still has quite a few appointments but hey she's outta the hospital for now!
 
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Let's all keep praying for her. Nothing gets me in my heart more then seeing a child in pain or suffering. It always seems so unfair. I look at my kids and realize how blessed I am. I can't even imagine what it would be like to be a parent of a child who isn't healthy.

Glad to hear she is home.
 

iCraig

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Awesome to hear, brother. Continuing to pray for a quick and issue-free recovery for her!
 

ciggy

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Let's all keep praying for her. Nothing gets me in my heart more then seeing a child in pain or suffering. It always seems so unfair. I look at my kids and realize how blessed I am. I can't even imagine what it would be like to be a parent of a child who isn't healthy.

Glad to hear she is home.
Could not have said it any better...still praying for her bro!
 
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